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i need help doctor do not know whats wrong with me

hello,

I need HELP!!!!!!!

I am a 31 year old African American man with health issues that my doctors can not find or better said diagnose. I have been having this problem for years now and I hope that you can help me or at least send me to the right kind of doctor. Here is the story:

It all started about 5-6 years ago, back then my hair was very long and I would get it braided. So in order for my hair to look good, I had to take the necessary steps in its up keeping. One night before I was to get it done I washed it and did a hot oil treatment. The oil was a little too hot and burned me on the side of my head. I shook it off and thought nothing of it. A few weeks later I notice a small sore on my head. It would come and go then finally went away for a long time but my hair in that area started to fall out. So being that at that time I had no money for insurance to go to a doctor and the local free clinic didn’t give a hoot unless you had an STD (which I was tested for and came up negative), again I said "...well maybe this is Gods way of telling me to cut my hair :).
Anyways I move to Houston and started working for a major computer company and got insurance. By this time more symptoms begin to pop up. Sores on my neck and scalp that itched like crazy and a mild weakness on the right side (same side as the burn) of my body. Then it got worse, being very weak and numb in my right hand, I began to walk with a slight limp, and the sores never went away.
I had all kinds of test and scans done. They did find a tumor in my head at the base of my skull and I had surgery and had it removed. Now before you say "well that was the issue", I neglected tell you that I have a mild birth defect call neurofibromatosis type 1. The tumor was one of the neurofribromas. Now during the surgery my surgeon did say he had to drain a large cyst below my scalp.
After the surgery my symptoms began to get worse. My ears itched and always had fluid in them (anther symptom). My hand got weaker and number. I bean to feel and "hear" a liquid moving in me on my neck and scalp.
Went back to my PCD and they took swabs of the sore and it came back as staph. I went to an ENT and he took samples out my ears and he said “a fast growing bacterium I have been on all kinds of anti-biotic and they only work a little then the itching and puss in the ears come back.
Now I'm at the point that my right hand can barley feel anything and now my left is going down the same road.
I’ve been to my PCD, an ENT, a Dermatologist, and a Neurologist all they do is take samples and say staph and prescribe antibiotics. I have an MRI with and without contrast, CT scans, and x-rays and they never see anything. (But the weird thing is that when I got the scan for the tumor, the cyst that the surgeon told me about didn't show up either. I do not have any other disease, I’ve been tested for AIDS, syphilis, etc and came back that I’m healthy so if any of you has a clue on what I need to do please help.

if you have a good answer please email me Spencer_Joseph@sbcglobal.net


Answers:


You have been thoroughly examined by specialists, which means there is nothing really that I could add that would be of much help. You have various seemingly unrelated symptoms, and I can't pinpoint the exact nature of your ailments. It would be best to talk to your own doctor face-to-face about these concerns. It is not possible to expand on the diagnoses made by specialists without the benefit of interviewing you and examining you physically. Feel free to write again if you have further questions.